Sunday, April 14, 2013

To be (cancerous)...or not to be (cancerous)

Ladies and Gentlemen....it is time to PANIC!!!!!!!!!!!!!!!!!!!!!!!!!

The day is almost here--the day when we find out just how cancerous I am...or am not (grammar???)

Listen up.
I had a dream last night.  A dream that reminded me that I can never get too comfortable, because my body is a freaking landmine.

In said dream, I was sitting in a Wal Mart (yes, sitting) on the floor in front of some display.  Now, if I had simply been sitting in Wal Mart in front of a shelf, I would not have been able to make any sense of the dream.  But in the dream, I was bald.  Not only was I bald, but I was wearing my blue dress.  

The blue dress!  The SUNY Upstate-ugly-bald-chick-radiation-burn-chemo-vomit-sleepy-oxycodone-kidneyfunction-injection-fritos-pizza-nurses-nerfgun-hospital-smelly-get-out-of-my-room-I'm-too-old-to-trick-or-treat-around-the-cancer-ward-blue dress.

It wasn't really a dress so much as it was like...a nasty nightgown type thing that you could pass off as a dress for someone who has no fashion sense whatsoever.  

I had the dress in blue and yellow.  I can't remember which came first, the blue or the yellow, but I remember my mom asking me if I'd like her to pick up another one, because it worked so perfectly in the hospital. It hung low enough that my port was easily accessible, and didn't stick to the tape on my chest, or cause it to peel. It was easy to maneuver around tubes and medicine poles, didn't irritate my skin, and was very convenient when the nurse came in every two hours to make me take a leak.  You see what I mean.  

When I finished chemo, I told my mom that the dresses needed to go.  They were so depressing, and not conducive to a girl who is trying to pretend that the past year of her life didn't happen.  So they were disposed of post haste.

But apparently, my subconscious remembers them well.  Because in the midst of final exams, final performances, final presentations, my brain reminded me that it's about that time again...it's scannin' time bitches!!!!

The dream makes sense.  The blue dress, the bald head, the Wal Mart (I have a ritual the night before scans--my mom gives me twenty bucks and I go explore Wal Mart...gets my mind off things)--a brilliant reminder from my subconscious that its time to start panicking!

Now, the most rational way of dealing with scannin' time is to look at the facts:
*I feel fine! (and I'm sexayyyyy!)
*No pain.
*Hips doing fine.
*Bruising down to a minimum.
*Stronger than I've been in a long time.
*Pooping normally (the most important aspect of them all)

Reason would tell us that there's no reason to worry, right?

WRONG!

Over the next few weeks,  I will look for as many reasons, signs, omens, etc, that my cancer is back, because it is clearly the most reasonable thing to do. By the time I get to the doctors, I will be so thoroughly convinced that I've relapsed that any other result will be utterly shocking!

You see, I have to convince myself the cancer is back.  It's the only mechanism I have for getting myself through the crazy interim waiting period between now and my scans.

It works like this: In my brain, I say "Jesse...it's bad news.  The cancer is back."

I have to expect the worst...it's in my nature...I'm a pessimistic, angry, easily annoyed, frustrated bitch.

In this case however, I find that it works to my advantage.  It forces me to examine how I would deal with things if the cancer is back---and also helps me realize that it wasn't all bad:

*My family was closer than ever.  
*I got to eat whatever I wanted.
*I got lots of time to read and write.
*Showering took less than a minute.
*No shaving required.
*Always had an excuse to take a nap.
*I met some of the most selfless people.
*I had a very wise sense of perspective, which I easily lose sight of now that I'm "normal."

I have to admit--it wasn't all bad.  Just mostly bad.

Once I remember these few good aspects, I know I can handle anything--either outcome.

----->If there's no sign of cancer--amazing!  I'm a lucky, lucky girl.
----->If there is...DING DING DING! bring it the f*** on.  Round 2 bitches, here we go.  Because the truth of the matter is, I can do it again.

And what choice would I have?  It's something I think that only people who've been seriously ill could ever understand.  People say to us "you're so strong, you're so brave."  But there is no other choice.  You just do it.  The doctor says chemo, and you get chemo.  The radiologist says radiation, you do radiation.  The nephrologist says kidney transplant, you beg your sister for her kidney.  There's never really this ultimate inner debate that people assume you have.  There's not usually a point when you say "I choose to be strong."  You just do it.

I guess in actuality I'm just preparing myself for the worst.  Is it a fool-proof method?  Probably not.  It'll still be devastating if there's bad news.  But at least I've prepared myself.  I know what to cling to, I've thought it all through.  

Just when you think everything's fine and dandy, you dream about a blue dress and everything's crazy again.  Everybody has their cross to bear, and this is mine.  

Life sucks.  It's true.  Everyday is just a new set of hours in which we all just deal--some days are better than others, some easier, some harder...

Good or bad...we deal. (drugs)

Just kidding, I don't deal drugs.

Monday, April 8, 2013

Confessions of a Disgruntled Second Grade Future Cancer Survivor

The following passages were found in a red composition notebook in the basement of Jesse's house.  The words (spelling, capitalization, and punctuation) appear EXACTLY as they are in the document--they have not been altered.

They are published here for your entertainment.  And if you pay attention, you might just learn something from them...but probably not.  

I give you:
Confessions of a Disgruntled Second Grade Future Cancer Survivor




September 18, 1998
My favorite time of the day is dinner.  I do it with my family.  END OF ENTRY
----------------------->Fatty.


September 25, 1998
My favorite clothes to were are my blak pants and my purpul shirt.  I got it at the gap.  I wear it to school.  It is a nice outfit.  END OF ENTRY


September 28, 1998
Usually I am happy in the morning first I get dressed.  Next I eat breakfast.  Finally I go.  END OF ENTRY
--------------------------------->Glad we got that cleared up.


October 7, 1998
I would never play with maches or lighters.  Why?  because you could get really hert.  So never touch enyting that can case a fire.  END OF ENTRY
------------------>I touched a stove once to see if it was on.  And it hurt. I was right.  



October 15, 1998
We watched a movie called Miss Nelson is missing.  It's about a very noisy class.  Our class is noisy I am somtimes I talk with my nibor but I get quieter.  Even no wear noisy I like school.  END OF ENTRY
--------------->My talking with my "nibor"  I meant plotting with the person who sat next to me about ways to get the girl who sat across from us in trouble (Sorry Britt.)


November 5, 1998
When the rain hits my face I think it feels like cold snow hitting my face.  END OF ENTRY
------------------------->I was always very intuitive.


December 2, 1998
My least favorite food is limae beans.  I throgh up.  But my dad made me eat them once.  END OF ENTRY
-------------------->He said we wouldn't go to the mall until I had a bite.  Meanest father.


January 8, 1999
Last year I got a spice girls watch.  And when I brought it out for play everyone wanted to play spice girls.  And two peopole wanted to be baby spice.  Then everyone started quitting.  And all Who was left was my friend Amber.  We were really mad at eahother.  But we made up.  END OF ENTRY
---------------------->Amber, if you're reading this, thanks for sticking around til the end!  I know                                  how overwhelming that game could get.


February 4, 1999
This month you should be honest and truthfull to all.  It sometimes is hard to tell the truth because your afraid you'll get in trouble.  But sometimes when you tell the truth you won't get in trouble.  The person will be greatfull you told the truth.  END OF ENTRY


February 10, 1999
I had a poptart a big glass of mdecided to wear my teddy bear sweater and my bellbottom jeans with the black stripe down the middell and then I washed my face.  END OF ENTRY
------------------------------>Those bell bottoms were the shit.  I was all about bell bottoms.


March 10, 1999
Dinosaurs have been around about 200 years ago.  No people were around by that time.  Some people think they just got old and died.  END OF ENTRY
----------------------------->This is the most brilliant thing I've ever said.


March 15, 1999
I had a GREAT sunday.  It was my birthday.  I had 5 favorite presents.  One was a secret diary, It's like a computer diary.  It's really neat.  Another one was a flashlight fun Stacie and pooh doll.  The flashlight really works.  And this art set it's called Thumthings.  And a thing were you paint frams. And the last one was a little baby dressed as a bunny.  END OF ENTRY


March 24, 1999
My best singer is Brittany Spears.  She sings, Baby one more time.  She is a good singer.  END OF ENTRY


May 3rd, 1999
My mom went to NYCity.  I went to the carnival with my sister and my dad.  We all went on Spin the Apple, the Fun Slide, and all sorts of things.  Then that night my mom came home.  She bough me a beanie baby and cats cradle.  END OF ENTRY


May 17, 1999
On Saturday I went to my friends new house.  We played in the fort.  We saw a real rabbit hole.  And a dead pig barried in leaves.  And on Sunday my dad brought me to the store and gave me a choice.  I could get the beanie baby Kicks or the Hope.  I got Hope.   I really like it.  The end.  END OF ENTRY
------------------------------------->I haven't seen a dead pig in my entire life.

May 24th, 1999
It is a cloudy day.  We will go outside for play.  I hope it rains in the evening.  The flowers need rain so they can grow.  They also need                    END OF ENTRY 
------------------------------------------------------->WHAT ELSE DO THEY NEED??????

June 1st, 1999
On momorial day at 18:15 AM My dog had a baby.  I named the baby Bouncer.  And I march in the parade with my soccer team.  It was lots of fun.  END OF ENTRY
--------------------------------->I didn't have a dog until I was 18, and never went by military time.


Love
This Bitch